Last May, I held a fundraiser to help raise awareness and money for Ehlers Danlos Syndrome (EDS). Thank you to all who donated, and if you didn’t win last year, here’s another chance! I have made another quilt to help raise money for EDS Network Cares, Inc. Please check out their website. They are a wonderful organization that is 100% volunteer run. That means ALL donations go towards research. It’s my understanding that they will be helping to fund a new research project in the next month or so.
For those that don’t know, EDS is a group of hereditary connective tissue disorders. (learn more about EDS here) There are several different types. I am affected by the vascular type. I have major collagen deficiencies in my vascular system. Collagen is like the glue that holds everything together. So my ‘glue’ is more like that crappy paste that you used in kindergarten that never held anything together. Currently there is no cure, treatment or prevention. I believe that a cure can be found. This is why it’s so important to help fund these research projects. You may just help in saving a life, possibly mine!
For every $5 you donate to EDS Network Cares, Inc., you will be entered for a chance to win this quilt. Please go to my First Giving Page to make a donation. Here’s the quilt that I will be giving away:
It’s a very colorful quilt! It’s made from all cotton and measures 82″ x 84″. That will fit up to a queen size bed!
Here is my official quilt holder and wonderfully supportive husband!
Thank you in advance for your support and generosity. And good luck! Winner will be announced on June 1, 2013.
Alison







































